Olivia had her blood work done last Thursday and we're happy to report that her counts have improved a lot from last week. Her ANC is now back to 1100. Still below normal, but a big jump from falling below 200 last week!
She had her scheduled spinal tap yesterday, Friday and all her chemo regimen is now back to normal. It was a good week off chemo, for both my husband who administers the meds and specially for Olivia. No fasting for a week (she fasts daily for her meds) made it easy for all of us.
As I was talking to her doctor after the spinal tap procedure, she was surprised to know that last week was just Olivia's first episode of fever & neutropenia since maintenance started and we are already in cycle 5. I guess that's a good thing. It's sad to know that it happens more often to other kids. I think about all the other kids always and I know each and everyone of them are a fighter in their own ways. We'll get through this!!!
Olivia is getting into the habit of helping the doctors with the injections and this time, she helped out injecting her anesthesia. She had no idea what she was taking in although she was saying she is going to outerspace! She was really hungry before the procedure but couldn't eat anything until after spinal tap was done. When she woke up, she was happy to have her favorite froot loops!
hi, I'm a mum of 4 years Olivia :) she is in Maintenance cycle 3 now. I have a question is your Oliwia from the start Maintenance every week takes oral chemotherapy or from time to time is stopped due to low blood results. We have a problem with find good dose for her. Thank You
ReplyDeleteOlivia takes oral chemo everyday, once a month thru IV, and every 3 months IV and intrathecal (spine). From the start of Maintenance phase, it was only her first time to stop chemo right before maintenance cycle 5 due to low blood counts. She is now 100% back on her chemo regimen. We were told it takes 2 episodes of fever/neutropenia before they lower the dosage. Hoping for the best for your daughter.
DeleteThank you for replying me. My daughter takes oral mercaptopurine (1,5 ml)every night, methotrexate (2 tablets) once a week, vincristin in clinic once a month, and IT in 2nd and 30th day each cycle, prednesol for 5 days every month... Her doc couldnt find right dose for her for all first cycle, she is very sensintive for chemo. Her ANC jumps all the time from 3 to 0.6... so I little worry that results can not settle down...maybe I'm exaggerating a little because doctors say that many children have problems in the first months of Maintenance. Once again thank you AND all the best for Olivia.
Deleteso happy to see the pictures of princess olivia. she looks so pretty! please give her my love.
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